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How is PDA treated in autism?

Treatment Options For Pathological Demand Avoidance Areas of need include sensory support, help with identifying emotions or managing anxiety, or support with speech and communication.

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What Is Pathological Demand Avoidance?

Coined in the 1980s by British psychologist Elizabeth Ann Newsom, PDA isn’t a formal diagnosis in the DSM-5, but a subtype of autism that is gaining more recognition. All PDA individuals are autistic and can share common traits with members of the autistic population, including differences in communication, social interaction, sensory needs, and special interests or stimming; however, PDA also presents with more subtle social differences.1,2,3 PDA individuals express that while they may want to meet demands or expectations, they’re unable to do so. Ordinary tasks, such as eating in response to hunger cues or following directions in class, can invoke a sense of anxiety or dread, preventing the individual from meeting the demand. Sometimes they will “freeze” or find themselves in a state of fight or flight. In other cases, they may do the opposite of, or anything but, what would be an expected response.2 Because PDA individuals may not fit certain stereotypes about what autism is thought to “look” like, it isn’t uncommon for them to go undiagnosed/misdiagnosed for longer periods of time. Missed diagnosis or misdiagnosis is especially common for autistic girls and women who fit the PDA profile.4

Strengths of PDA Autism

PDA autistic individuals can be innovative, independent thinkers and often possess the trait of being autodidactic, preferring to learn on their own.5,6 Other strengths of PDA individuals include being sensitive, highly empathic and intuitive, determined, compassionate and humorous.7 In a shift away from viewing demand avoidance as purely pathological, PDA autistic adult and educator, Harry Thompson (as cited by Dr. Donna Henderson) often describes PDA instead as a “persistent drive for autonomy,” where any perceived threat to autonomy invokes an extreme anxiety response and action in an attempt to preserve it.5,6

PDA vs. Oppositional Defiant Disorder

Autistic children who fall under the PDA profile are often misdiagnosed as having oppositional defiant disorder (ODD). These profiles may look similar but are actually quite different and require different approaches. First, PDA is a presentation of autism, and PDA individuals will possess other autistic traits such as sensory issues, difficulty with executive functioning, or social differences.8 While ODD can have genetic and neurobiological factors, oppositional behavior in those with ODD is thought to stem from thoughts and emotions that may be angry or “negative” in nature, whereas PDA resistance to demands is a result of neurological wiring and brain chemistry.8 As PDA self-advocate Harry Thompson expresses, “ODD is more of an ‘I won’t.’ PDA is more of an ‘I can’t.’”9

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